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[personal profile] pyjamapants
We had an extremely eventful weekend here in Chicago. Thursday night the following fangirls met to see Deathly Hallows Part 2: [livejournal.com profile] annietalbot  (and her awesome sister), [livejournal.com profile] apollinav[livejournal.com profile] christev , [livejournal.com profile] drinkingcocoa[livejournal.com profile] geminiscorp[livejournal.com profile] juniperus[livejournal.com profile] machshefa[livejournal.com profile] mischievous_t[livejournal.com profile] pyjamapants, and [livejournal.com profile] voxangelus.

Friday, [livejournal.com profile] drinkingcocoa  and [livejournal.com profile] geminiscorp  left us, [livejournal.com profile] sc010f   joined us, and then some bad things happened.

This afternoon, after the events of the past few days had some time to settle, we asked [livejournal.com profile] mischievous_t  who she wanted it shared with, and she said, "The world." So, I am posting this information at the express wish of  [livejournal.com profile] mischievous_t  who said she needs all the help and support she can get.

What Happened
Friday night, after experiencing ocular migraines that came and went for a couple days, [livejournal.com profile] mischievous_t  (T) had a seizure. [livejournal.com profile] annietalbot  was able to intervene and provide immediate aid to T. [livejournal.com profile] christev  summoned emergency services, and they arrived within minutes. AnnieTalbot accompanied T in the ambulance, and [livejournal.com profile] christev and [livejournal.com profile] apollinav followed.

A CAT scan at the hospital revealed a brain tumor, and T received drugs to reduce brain swelling and prevent additional seizures. AnnieTalbot and Christev stayed with T overnight. 

Saturday morning two of T's aunts and a cousin flew in, one of whom had 30 years experience in a neurosurgery ward. T's husband also flew in.

Saturday afternoon, she had a full-body CAT scan and an MRI. The doctors were able to determine that T's tumor is golf ball sized, located on the outside of her brain between the Occipital and Parietal lobes and growing towards the skull. The tumor and swelling have placed pressure on her optic nerve, and she has a reduced field of vision from her left eye.
 
What's happening on Monday
At 12:30 Central time, T is scheduled for surgery in Chicago to remove the tumor. In the operating room, they'll be performing an initial, quick and dirty biopsy to determine the immediate course of action in terms of how much tumor is removed, how any surrounding tissue is treated, and what, if any, immediate chemotherapy is administered. Post-op, the tumor will undergo the traditional biopsy for complete testing and development of a course of action for followup treatment. Based on the tumor's size, growth rate (based on previous CAT scans), and growth behavior, the signs do point towards it being a cancerous tumor.

Post-surgery, I'll be posting updates or point you towards other posts with updates.

T is restricted from air travel. Following her recovery from Monday's surgery, she'll be travelling by land to return home for any followup treatment. The doctors predict that she'll be released from the hospital on Friday, but it's not clear when they'll give her clearance to begin her 1,000+ mile journey home.
 
 
The good news in this
Okay, so that's the round of bad news. But there is some good news in this, and that's what I get to share now.

1. The doctors said that the trip this weekend was a REALLY GOOD THING because the change in air pressure during the flight was probably what triggered the brain swelling, which led to her headaches and seizure, which led to the CAT scan and discovery of the tumor. If the trip hadn't happened, it could have been several more months before the tumor grew large enough to trigger severe headache/seizures.

2. The CAT scan showed NO suspicious activity in other areas of her body. So there are no indications that, if the tumor is cancerous, it has metastasized to affect other areas of her body.

3. T's seizure happened when we were nearby, available to help rather than any number of other scenarios.

4. T is handling this REALLY well. She's being positive and focused and is going to receive the best damn care possible.

5. T has an AMAZING group of friends both on the ground here in Chicago and across the globe. T has felt EVERYONE'S love and support and has been buoyed by everyone's concern and positive thoughts.

6. [livejournal.com profile] machshefa  has been an amazing, steadfast, trained, qualified, and, frankly, magical friend. She met with both T and her husband last night at the hospital (as soon as she un-pumpkined) to provide them with psychological support that they may not have received otherwise.
 
 
 
How T's Doing (Courtesy of Machshefa)
All of us who have visited T have been blown away by how well she is addressing the medical and practical issues facing her, and how gracefully she is riding the emotional waves that naturally accompany this sort of medical crisis. She informed us today that she is saving her “Hufflepuff panic” for later. Even so, there are moments of deep emotion as well as moments of giggling and silliness. We should expect this ebb and flow to continue; it is a normal part of the grief and adjustment to a serious (and ongoing) medical crisis.

T is approaching the medical and emotional ups and downs with a recognition that staying in the present moment (and not getting overly caught up on “what if?”) serves her best. She is comfortable with the scary feelings though she also doesn’t want to ‘wallow’. So, if you talk with her and she is having one of those moments, the best thing to do is to honor and acknowledge her feelings and then take her lead as she makes her way back to a more hopeful and positive place. As T said, it’s just like when you’re complaining about your spouse to your friends and they say, “YEAH!” and then later, you’re telling them how  you’re telling them how awesome he/she is and they say, “YEAH!” ☺
 
 
 
What you can do to help
-Emails, buzz posts, and LJ posts today and tomorrow. She may be reading them. Someone may be reading them to her. Please feel free to point your own flist to this post, if you want to signal boost. [Lots of signal boosting tonight, y'all are awesome! Maybe some signal boosting tomorrow? (if new readers are wanting to signal boost.]

I have officially absolved T from having to respond to individual posts, and it may be some time before she's able to pull together a post herself.
 
-Continued email, buzz, and LJ support as any follow-up treatment progresses.
 
-PODFIC. T's vision has been affected, and it's unknown how soon she may recover it. While she CAN read out of her right eye, it's exhausting and straining. We've established a community to organize, explain, and post podfic. The community is empty at the moment, but you can join [livejournal.com profile] smokingbaby  and details will follow. We have some specific requests for previously written fic, and we'll be contacting those writers to organize recordings. ANY fic you have to offer, new and old is acceptable and encouraged. (Although, Dicky, T has requested NOT the HAGRID story). No fic will be recorded without the author's permission.
 
-If you regularly chat with T and 1) need help processing and coping with this or 2) are concerned that you may say 'the wrong thing' or have no ideas about what 'the right things' might be, then [livejournal.com profile] machshefa has offered to support anyone who needs this kind of help. Additional, she's recommended the following links:
http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/active-listening.html
http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/BetterYou/comfort_sick_friend.html
http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/ComeTogether/meaningful_messages.html
http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/listenup.html
 
http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/ten_dos_and_donts.html
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(no subject)

Date: 2011-07-18 03:28 am (UTC)
From: [identity profile] irishredlass69.livejournal.com
OMG

PJ thank you so much for picking up the communications end and keeping us all informed.

Have sent message via LJ (I don't buzz) letting her know my thoughts and prayers are with her.

{{hugs}}

(no subject)

Date: 2011-07-18 03:29 am (UTC)
From: [identity profile] clairvoyant12.livejournal.com
*sending ultra-mega healing vibes, thoughts and prayers to T* Thank g'd T had the fangirls.

(no subject)

Date: 2011-07-18 03:37 am (UTC)
From: [identity profile] autumnmist.livejournal.com
OMG... Is she at the University of Chicago Medical Center? If so, I live a mile away and would be happy to help/deliver/visit.

(no subject)

Date: 2011-07-18 03:41 am (UTC)
From: [identity profile] machshefa.livejournal.com
*hugs

We don't know if T is comfortable giving out that particular information (ACK, something we forgot to ask her! *hangs head). Thank you, thank you, thank you for such a generous offer, though. We will be keeping you all posted after the surgery tomorrow about her condition.

(no subject)

From: [identity profile] anonymous-plume.livejournal.com - Date: 2011-07-18 03:44 am (UTC) - Expand

(no subject)

From: [identity profile] machshefa.livejournal.com - Date: 2011-07-18 03:51 am (UTC) - Expand

(no subject)

Date: 2011-07-18 03:42 am (UTC)
From: [identity profile] anonymous-plume.livejournal.com
Thanks for being The Voice again, PJ.

Also, I had to seriously laugh at her response of, "The world." So typical.

(no subject)

Date: 2011-07-18 03:49 am (UTC)
From: [identity profile] ariadne1.livejournal.com
Signal boosted - and hugs to all.

(no subject)

Date: 2011-07-18 03:53 am (UTC)
From: [identity profile] dragonsinger954.livejournal.com
Prayers and healing vibes to her and her family dealing with this.

(no subject)

Date: 2011-07-18 03:58 am (UTC)
From: [identity profile] morethansirius.livejournal.com
OMG!!!
Thank goodness this was discovered sooner rather than later. What amazing support she had! I'll be sending prayers, good vibes and hopeful thought her way all this week. Hufflepuff House loves her!

(no subject)

Date: 2011-07-18 04:00 am (UTC)
From: [identity profile] sbrande.livejournal.com
Massive hugs and prayers are going out to her and her family.

Love Sonia :)

(no subject)

Date: 2011-07-18 04:00 am (UTC)
From: [identity profile] bluestocking79.livejournal.com
Wow. Just... wow. I'm so sorry T is going through this, but I'm so, so grateful that she was surrounded by such incredible, capable, compassionate, generous, thoughtful, amazing women. The lot of you amaze me, and I'm so proud to know you. &hearts

And thank you for organizing all this information and letting us know what's going on. I'm not actually on T's flist, but I certainly do know her, and I'm very happy to signal boost and send encouragement and do whatever is needed to let her know that we've got her back.

~hugs and love and hats off to all of you~

(no subject)

Date: 2011-07-18 04:06 am (UTC)
From: [identity profile] rayvyn2k.livejournal.com
I'm not on her f-list either--I cannot say I even know her. But I have signal boosted...and send healing thoughts.

If any of my stories would be suitable, I'm happy to give my permission for their use if wanted.

(no subject)

Date: 2011-07-18 04:11 am (UTC)
From: [identity profile] sshg316.livejournal.com
So grateful that she was with you all. She's such a generous, lovely woman, and my thoughts and prayers will certainly be with her and her family (and her fellow fangirls) tomorrow. *HUGS HUGS HUGS HUGS HUGS*

(no subject)

Date: 2011-07-18 04:22 am (UTC)
From: [identity profile] lady-rhian.livejournal.com
So very sorry to hear this. Not on her f-list, but my thoughts and prayers will definitely be with her tomorrow. It sounds like you all were a great blessing to her this weekend. ~major hugs~

(no subject)

Date: 2011-07-18 04:24 am (UTC)
From: [identity profile] hardhatcat.livejournal.com
i saw this on [livejournal.com profile] dragonsinger954's post and although i do not follow [livejournal.com profile] mischievous_t's posts i will keep her in my thoughts and prayers all the same. I had a small tumour behind my optic nerves, that luckily wasn't cancerous but still caused a lot of problems. I'm so glad they have caught T's now and i hope that they can succuessfully treat it.

(no subject)

Date: 2011-07-18 04:30 am (UTC)
From: [identity profile] aurette.livejournal.com
Oh, wow. This is incredible. Hugs to all you ladies that were there for her. Hugs to her family that flew in to be at her side, and HUGS HUGS HUGS to T!!! Who was it that said life is what happens when you're busy making plans?

I can help with a podcast, if someone 'splains how. I give good voice.

(no subject)

Date: 2011-07-18 04:35 am (UTC)
angrboda: Close-up of hedgehog bristles, with my username written above (Default)
From: [personal profile] angrboda
I don't know her myself, but she's one of those names, you know, that you see around on the flist so much in other people's posts and commenting that you end up feeling like you know them a little bit after all.

I hope the surgery today will go well and that it's something from which she can eventually make a full recovery.

(no subject)

Date: 2011-07-18 04:46 am (UTC)
From: [identity profile] kittylefish.livejournal.com
i will send some positive healing vibes her way.

(no subject)

Date: 2011-07-18 04:46 am (UTC)
From: [identity profile] tudorpot.livejournal.com
gobsmacked- sending healing vibes- hope all goes well in the OR. A note to the fangirls with T - during all this- make sure to take care of yourselves- a very stressful situation- so glad she had you all with her. I'm sure machshefa will offer help to those who need it. Wish I could do something to help M-T.

(no subject)

Date: 2011-07-18 04:53 am (UTC)
From: [identity profile] roseofthewest.livejournal.com
Oh, I'm so sorry to hear this. I agree that the way everything good about this has fallen into place is wonderful. My prayers and best wishes go out to T and her family. To T, specifically: Thanks for being such a great presence in the community; now we get to return the favor.

(no subject)

Date: 2011-07-18 05:00 am (UTC)
From: [identity profile] sexi-conejita.livejournal.com
OMG that had to have been scary but T is clearly strong and holding up well...I'm sure everything will be alright and she'll be on her way home in no time...

(no subject)

Date: 2011-07-18 05:08 am (UTC)
From: [identity profile] teddyradiator.livejournal.com
Our thoughts and healing go out to T and all good wishes for a successful surgery tomorrow. Thank you girls for being there with her when she needed you the most. And, of course, wishing you comfort and a full recovery afterward. All the best.

(no subject)

Date: 2011-07-18 05:11 am (UTC)
From: [identity profile] natasnape.livejournal.com
Please, tell T that I wish her that the adventure she is experiencing would be like childbirth. Dangerous, painful, emotional, but in the end of it cathartic in a way that defines the word. I wish her the adventure that will guide her through to a new life.

Good luck, T, in the surgery and with the biopsy.

(no subject)

Date: 2011-07-18 05:14 am (UTC)
From: [identity profile] severely-lupine.livejournal.com
Oh, that's terrible, but it's good they found it before it got any worse. I'll pray for her, and check out the comm. I've never done podfic before, but this is a good reason to look into it.

(no subject)

Date: 2011-07-18 05:41 am (UTC)
From: [identity profile] severus49.livejournal.com
I'm so sorry for T's illness, but so glad that she was able to be surrounded by friends who could help right away. Sending my well wishes her way, and keeping her in my thoughts and prayers for a speedy recovery.

(no subject)

Date: 2011-07-18 05:53 am (UTC)
From: [identity profile] kribu.livejournal.com
Oh damn. It's such a terrible shock - for all of us, and I can't even begin to imagine how awful it must have been for all of you and T in particular.

I'm sending all my good vibes and best wishes her way, and I really hope that the surgery goes well and that everything post-op goes as well as possible under the circumstances.

(no subject)

Date: 2011-07-18 06:40 am (UTC)
From: [identity profile] madeleone.livejournal.com
Oh, I am so sorry to hear about T's ills and will be sending many healing thoughts and positive vibes her way. So happy that she has the support of such a wonderful group of fangirl friends to watch her back through this difficult time.

So, hey T, I'm here sending lots of Hufflepuff love your way. *Hugs* to you, sweetie.
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